Seven years ago Lisa Jane Browne died suddenly, and inexplicably, at the age of 27. According to the pathologist who examined her, she should still have been alive. Thanks to the tenacity of her mother, Doreen Harley, we now know Miss Browne probably died as a result of Long QT Syndrome; a disorder affecting the rhythm of the heart.
When the self-help group CRY was established a decade ago for the families of those who had died from Sudden Adult Death Syndrome, its founder was told there were