The
painful first anniversary since their 11-year-old son died so suddenly and
unexpectedly, has just passed for Wendy and Robert Hayes.
They still do not have a
definite answer why Sam died in May last year, but the courageous couple
have left no stone unturned in their support for campaigning for screening
for families.
The couple from Locko
Lane Farm, Pilsley, near Clay Cross, has helped CRY (The Cardiac Risk in
the Young) charity and Dari Taylor, MP for Stockton South, get Government
approval to set up an advisory group which will look into the condition.
Possible measures are
expected to include screening for a fit young person displaying symptoms
like frequent giddiness, feeling faint or breathlessness disproportionate
to activity.
And when a young person
has died inexplicably, or from a cardiac disease that has a genetic cause,
parents and siblings should be offered screening.
Helen
(40) and Robert (44), wrote to several MPs in support of CRY campaigning,
and also wrote to the Prime Minister, who passed on the couple