CRY’s Co-ordinated Fast Track Service For Affected Families
“As well as working with the Department of Health and others to develop high quality cardiac services for young people and families, CRY also provides a significant amount of funding to the NHS to help ‘fast-track’ the complex range of services needed following a sudden cardiac death to determine the risk to other family members. CRY is to be congratulated for its ongoing role in the development of these services.”
Professor Roger Boyle CBE, National Director of Heart Disease (quoted in 2007)
Fast track coroner/pathology service managed by histopathologist Dr Mary Sheppard
- funding coroners’ young sudden cardiac death referrals to the CRY Centre for Cardiac Pathology at the National Heart & Lung Institute Imperial College London, Royal Brompton Hospital
Fast track screening service managed by consultant cardiologist Professor Sanjay Sharma
- for those that cannot get a GP referral
- CRY screening clinics and family screening events throughout the UK
Fast track cardiology referral service managed by consultant cardiologists Professor Sanjay Sharma and Dr Elijah Behr
- after a loss
- for those with signs and symptoms
- CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology at St George’s Hospital, London
Fast track athletes screening service managed by consultant cardiologist Professor Sanjay Sharma
- at the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology, St George’s Hospital, London
- CRY’s mobile screening service for elite athletes
- gives counselling, support and help to 12 – 35 year olds who have been diagnosed with a cardiac condition
- holds group meetings with a visiting counsellor and consultant cardiologist
Bereavement Support
- Bereavement support through a network of trained individuals whose family suffered a Young Sudden Cardiac Death
- Regional Bereavement Support Days around the UK
The development of this programme was initially funded by a grant from the Department of Health
Ongoing research into young sudden cardiac death
pathology
- conditions as they affect athletes
- conditions as they affect the young (35 and under) general population
- bereavement
Information
- all information written by experts in “user friendly” language
- BHF funded CRY SADS booklet; in excess of 40,000 copies circulated worldwide
- Family Medical Conference where bereaved families and those diagnosed can learn about the conditions and ask questions of experts in the field
- International conferences for medical personnel interested in Sports Cardiology and Inherited Cardiovascular Conditions
These fast track services are in accordance with the NSF Chapter 8 guidelines
