Preventing young sudden cardiac deaths through awareness, screening and research, and supporting affected families.

01737 363222

[email protected]

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Support CRY

Help CRY by donating today. Your donation could save a young life!

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Support CRY

Help CRY by donating today. Your donation could save a young life!

Donate now

Support

Following a young sudden cardiac death CRY offers help to families through our bereavement support programme, as well as helping families to understand what caused the death and to be referred to inherited cardiac conditions specialists.

Awareness

Awareness not only helps identify those at risk, but also ensures correct clinical practice when treating a young person with an inherited cardiac condition.

#12AWeek

Screening

CRY wants All young people to have the opportunity to have heart screening. 1 in 300 people CRY tests will have a potentially life threatening heart condition which will benefit from lifestyle advice, treatment and sometimes corrective surgery.

Research

CRY funds world leading research which is transforming our understanding of the causes and prevention of Young Sudden Cardiac Death as well as the treatment of those at risk.
#CRYResearch

Jordan Burnett's Story

I really need to share Jordan’s story! Jord (as we always call him) was 19 years old. When he turned 18, he chose to buy a one-way ticket to San Francisco, California. Jord wrote me a beautiful note, saying he wanted to find himself in this world – I have that note framed now! He expressed…
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Chris Doyle's Story

On January 9th 2007, my son Chris Doyle, after having played a game of soccer, went home and complained of not feeling well. His mum sat up with him and Chris insisted on going to bed and told everyone he would be OK. His mum went to wake him for school (Galashiels Academy) but found him…
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Iain Davidson's Story

4th March 2013 was the day my life changed. My boyfriend of 6 years died: suddenly, far too young and without any warning. His heart stopped in his sleep. The cause of death for my healthy 29 year old man was heart failure. My entire world collapsed. The grief was all consuming, deep, dull and agonising…
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Pete Reynolds's Story

Pete died suddenly on 13 October 2004. The shock, and despair his family, girlfriend and close friends feel cannot be expressed fully in words. Pete was an outgoing and lively 27year old who lived his life to the full. He was a ‘natural’ at most sports and extremely fit. A black belt in Tae Kwon Do,…
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Matthew James Kamis's Story

My son, aged 26 years, died on 15th January 2006, (born on November 22nd 1980), of Sudden Adult Death Syndrome, which we had never heard of before we lost Matthew. Matthew was our youngest child. He had never been ill, and had shown no signs of feeling unwell. On the morning of January 15th, around lunchtime,…
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Claire Dee Shapland's Story

From the day Claire was born there was no mistaking she was a little girl, her sparkling blue eyes and smile would bring warmth to everyone who met her, feminine to the ends of her eye lashes. As Claire grew up in to a young lady her personality was one of embracing the love of her…
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Faye Linton's Story

Faye was only 25 years of age when she so suddenly died. She was within days of going on a ‘once in a lifetime’ holiday to America when we found her dead in bed on the morning of 30th October 2006. The doctors knew that Faye had a heart block problem, but as she had a…
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Jimmy and Chrissy's Story

Our family had a very strong history of seizures. It began with Mom and myself and I passed it on to my children. We had been labelled with epilepsy and with medicine we lived a fairly normal life. Chrissy began having seizures at seven years of age and Jimmy began at eleven or twelve. Jimmy was…
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Neil ‘Kymatik’ Schuyleman's Story

What can possibly prepare you for the total shock of being told – however gently – that your beloved only son had suddenly and unexpectedly ‘passed away’. What! How? When? The thought rushed through my head ‘Can I get there to see him before it is too late!’. Then the dawning impact that the strong, happy,…
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Philippa Chowne's Story

Our beautiful, kind, clever, fun-loving daughter died at home on the evening of 14th December 2011. She was fifteen years old, in perfect health and with everything in life to live for. On the day after her death, when we were in deepest shock, we discovered that our darling daughter had trended on Twitter as the…
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Cardiac Screening

CRY offers subsidised ECG and Echocardiogram screening to all young people between the ages of 14 & 35. There is a simple way to diagnose most cardiac abnormalities. This is by having an ECG (electrocardiogram) test. Results should be read by a cardiologist. For extra clarity an Echocardiogram (ultrasound scan) can also be done.If there has been a young (under 35) sudden death in the family, the family is entitled to be screened on the NHS. All of CRY’s public events are free to attend.

Full List of Screenings

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Research News

How research can lead to review and potential reform for UK screening policy

Empowering Hearts: Dr. Joyee Basu’s Groundbreaking Research Redefines Exercise Guidelines for Hypertrophic Cardiomyopathy Patients

CRY Medical Conference 2023

Medicine and Me: Young Sudden Cardiac Death

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CRY’s phone lines are monitored from

10am – 5pm Monday to Friday

01737 363222

Bereavement Support

CRY’s email is monitored

10am – 5pm Monday to Friday

[email protected]

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Preventing young sudden cardiac deaths through awareness, screening and research, and supporting affected families.

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Contact Information

Head Office:
Unit 1140B, The Axis Centre,
Cleeve Road, Leatherhead,
Surrey KT22 7RD

Tel: 01737 363222
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Email: [email protected]

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