CRY Update Magazine 44

Read Update 44 online here The CRY Update is the charity’s newsletter, published three times a year, reporting on CRY news and events, cardiac screenings, breaking developments in medical research and CRY supporters’ fundraising over the preceding months.


Heart victims still dying, MP claims

A rare heart disorder is still claiming the lives of young people, despite moves by the NHS to tackle the problem. The so-called Chapter Eight – designed to act as a model for best medical practice – is not working as intended, according to Dari Taylor, MP for Stockton South and a former Sunderland city councillor.


MPs concern of fatal disorder leads to meeting with minister

An MP says a rare heart disorder is still claiming lives despite new NHS guidelines. Stockton South MP Dari Taylor, supported by Durham North MP Kevan Jones, led the way on calls for more screening of at-risk youngsters by introducing a Private Member’s Bill – Cardiac Risk in the Young (Screening) Bill – in 2004. The


Tragedy family hope to raise awareness of heart syndrome

A teenager’s sudden death from an undiagnosed heart complaint has made her family determined to ensure others do not suffer their loss. Kasia Ber, 17, died at her home in Brier Avenue, Horden, East Durham, on the morning of December 28, last year. It was only discovered after she died that she had been suffering from


Annual Grand Charity Evening in memory of Levon Morland

15th September 2006 Another great night was had by all at the 2006 Grand Charity event held at the Chilton Lodge Hotel, Tyne and Wear. Raffles, music, food, a disco and guest speakers made sure that the event was thoroughly enjoyed by everyone. Kevan Jones MP, Chairman of the CRY All Party Parliamentary Group; Jack Doyle,


Memorial Fund night planned

A Gala dinner in aid of The Levon Morland Memorial Fund for Cry (Cardiac Risk in the Young) is being held at Middlesbrough’s Riverside Stadium. The dinner, hosted by Century FM football commentator Alistair Brownlee, will feature a raffle with prizes donated by Rio Ferdinand, Steve Harmison, Middlesbrough Football Club and Redcar Racing. The charity was


Charity golfers wanted

A charity fund in memory of a young man killed by a rare heart condition is looking for people to play a round of golf. The Lovon Morland Memorial Fund will hold a golf tournament, which it hopes could become an annual event, this Saturday, at the Cocken Lodge Golf Course, Leamside, near Durham City. After


Golfers to aid heart charity

A charity fund in memory of a young man killed by a rare heart condition is looking for people to play a round of golf. The Levon Morland Memorial fund is to hold a tournament, which it hopes could become an annual event, on May 27, at the Cocken Lodge Golf Course, Leamside, near Durham City.


Genetic testing offered to heart risk families

Families at risk from a rare form of heart failure will be offered free genetic tests to pinpoint the threat, the Government announced yesterday. The move marked a personal triumph for North-East MP Dari Taylor. Ms Taylor, MP for Stockton South, persuaded the Government to adopt her proposals to reduce the death toll from rare heart defects.


Screening hope

Margo Wright raised £5,500 to bring the CRY mobile cardiac screening equipment and a specialist medical team to Netherfields Community Centre in Beckfield in February 2004. Screening started at 9.30am and went on all through the day. Forty Young people were signed up for the screening Margo’s 32 year old daughter was found dead at the