Bereavement Support Training
CRY has a dedicated bereavement support programme to support families after the tragedy of the sudden cardiac death of a young person aged 35 or under. CRY’s bereavement support services are essential for our efforts to support bereaved families after a young sudden cardiac death. Background What we propose Background So many people have contacted CRY
CRY Pathology Centre
After a young sudden cardiac death expert pathology is essential. Coroners do not sometimes have the funds to access a service where they can refer complex cases to an expert pathologist. This means that, many deaths are simply recorded as unascertained or, incorrectly, such as epilepsy, asthma or drowning. Experts believe that most of these tragedies
New Screening and Research Database
Due to the rapid expansion of CRY’s research and screening programmes, we are in need of purchasing a bespoke database, which will allow us to develop our important work. Background Benefits Background This will be a cloud-based system enabling CRY to build on the success of our screening and research programmes and develop worldwide collaborations between
Cardiac Screening Clinic
CRY offers subsidised ECG and Echocardiogram screening to all young people between the ages of 14 & 35. Systematic screening programmes are needed to establish the prevalence of cardiac conditions in the young. The aim of a screening programme is to detect an underlying cardiac condition. Background What we propose Background Since many cases of Sudden
CRY International Medical Conference
In the UK, CRY are best known for raising awareness of young sudden cardiac death, for the support we offer to families after a tragedy, and for the cardiac screening services we offer to all young people. Throughout the rest of the world we are better known for the research we are publishing which is having
Development of an online medical questionnaire to replace the medical consultation as part of the CRY screening programme
Background What we propose Potential outcome and impact Background The current CRY screening protocol requires a specialist doctor to conduct the medical consultation with each person being tested in order to evaluate their health (symptom) questionnaire. Whilst this is currently an important role there is a significant cost implication.Furthermore, automation of the consultation has the potential
Myheart Meeting
We understand that being young and suddenly finding that you need to be treated for a heart condition is not easy. CRY’s myheart network provides personalised help, support, and information to individuals who have been diagnosed with a life-threatening inherited or congenital cardiac condition. Background What we propose Background myheart is a support system for individuals
Video Production
CRY has set up the myheart network to support young people aged 12-35 who have been diagnosed with a potentially life threatening cardiac condition. The group was set up after feedback from young people who found that the existing support group for ICD recipients, and other cardiac conditions were unhelpful. It was developed as a support
The proposed new CRY Centre for Inherited Cardiac Conditions and Sports Cardiology
CRY are looking to fund a new Centre for Inherited Cardiac Conditions and Sports Cardiology to expand our screening and research programme. Background What we propose Sustainability and costs Background Under the direction of Professor Sanjay Sharma, the CRY Centre for Inherited Cardiac Conditions and Sports Cardiology at St George’s Hospital, London, is one of the
Research into exercise prescription for those with Hypertrophic cardiomyopathy
Background What we propose Background Hypertrophic cardiomyopathy (HCM) is a condition where the heart muscle becomes thickened and, although HCM is a relatively rare heart disease, it is the commonest of the cardiomyopathies, which affects 1 in every 500 people.Although the benefits of exercise are well established, exercise may increase the risk of adverse events, such
